Saturday, March 14, 2009
Nathan's Lyme Disease
So Monday afternoon I got home from my morning class and rehearsal for TBB and I got a phone call from my mom that Nathan lost all his motor skills, his ability to speak and his eyes rolled back in his head and was gasping for air as he fell down the steps at my parents house. They called 911 and he was taken to Parkview hospital. Now mind you this is no surprise cuz Nathan is always in the hospital, at least for the last 8 years or so. ICU 4 times within the last 5 years and it just wears you down doing shifts by the hospital bed trying to keep your brother alive and the rest of your family together. So I'm always trying not to think about it. I tried not to freak out at first but then she called back and said he'd had a seizure, had coded and that it was really bad this time. I know since Nathan had been diagnosed (finally) with Lyme Disease and has virtually no immune system left that this may be it. I tried to find flights up to Fort Wayne but since it's Spring break time the prices were out of this world. So i had to make the quick decision to cancel all my classes and drive with Matt and Ezra straight there, through the night. I got to the hospital at about 9:30 AM on Tuesday and he was still shaking and speaking slow. He couldn't move and we were waiting on MRI tests and stuff. It was good for Ezra to be there since he has a calming effect. I got to stay with Carly since she only lives like 10 mins from the hospital, so that helped my mood. The next day this retarded doctor read his MRI and said since it didn't show that he has epilepsy she told him all this was caused by "stress". AND he was having twitching and shaking while she was talking to him and she asked him if he was having any more shaking? uhhhhhh he was doing it right in front of her and she was like "he wasn't doing this earlier right?" WTF?!!!! I was so pissed at her attitude and her just writing him off like he's crazy that I starting yelling and my hands were shaking and Nathan managed to grab his plastic water cup and hurl it across the room. I got soaked but i would have done the same. In the last 8 years he's been on like 15 different psyhcological medications that never worked since no one checked him for Lyme since it's so rare. So like everyone else, she basically told him it's all in his head and he's just faking it and needs therapy. We got his pshycolgist to come to the hospital to check him out and he wrote a report that he has absolutely NO psyhcological problems what so ever and needs to see an infectious disease doctor. Alex came by and hung out with me for awhile that night (then the next morning she drove her new car into standing water and had to climb out the sunroof as it sunk TOTALLY UNDERWATER. So she almost died too. AHHH!) The next day I slept alot and helped Nate do his physical therapy that day. He still had a real hard time lifting his right leg and when he tried to stand up he just shook til it gave out. At night I had dinner with Carly at this weird mexican place and then we shared loaded cookie dough ice cream and watched Step Brothers. Carly and I tried to sleep in the same bed and she squished me against the wall all night long lol! and her cat is CAR-AZY. anyway... i had to go home so we all said our goodbyes. Driving through Kentucky sucked since it heavy snowed the whole time and i haven't seen snow in 2 years, let alone remember how to drive in it! ugh... Nate stayed 2 more days, saw more lame doctors and they gave him a walker and a wheelchair and some painkillers and they were just like "good luck, we don't know what to do about Lyme sorry". He has a real doctor in Michigan that he will be seeing soon, and he can't go up and down stairs so i guess he's going to live upstairs at my parents house for awhile (lucky him right?) I made it back in time for 6 hours of rehearsal that night and I just collapsed when i got home and here i am, editing music and packing up my house since we are moving April 4th. SO until next time, stay alive people I can't keep doing this!
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1 comments:
I understand the frustration with doctors! You must be going through a lot of emotions. I am glad you got to visit him.
I didn't know you had a blog. Now I can keep in touch better.
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